One Patient, One Record April 6, 2010 - 8:30AM - 4:00PM Crowne Plaza Hotel, Ottawa, ON
Introduction: In partnership with the Canadian Association for People-Centred Health (CAPCH), Patient Destiny is hosting a second “One Patient, One Record” one-day symposium to promote patient eHealth on Tuesday, April 6, 2010. Building on the success of the inaugural symposium in Toronto in 2009, we seek to create further awareness of the vital importance of patients being able to access their own health information which we believe will improve their health outcomes. Symposium Objective: To create the dialogue between patients and representatives of the healthcare system in order to arrive at One Patient, One Record. Ultimately, we believe in developing an electronic health record for all Ontarians that can be accessed by the continuum of healthcare providers as well as the patients themselves which will then lead to improved health outcomes. Please click here to download the agenda for the upcoming symposium. Attendees: “One Patient, One Record” symposia are unique as they offer a dialogue opportunity between two distinct stakeholders – healthcare personnel and patients. The event on April 6th will, once again, bring together key healthcare decision makers and service delivery personnel in direct communication with highly motivated and informed patients. Patients: Patients are recruited in several ways: contacted through disease associations and foundations, cross-patient representatives and communications to the public at large through health providers and the media. We are seeking 50 patient representatives. Healthcare Personnel: Healthcare personnel are comprised of providers, administrators, researchers, academics, vendors and funding organizations. It is our intention to bring together as representative a group as possible in terms of perspectives, organizational relationships and geography. We are also targeting 50 attendees from this group. Symposium Background: In today’s healthcare system, the objective, put quite simply, is to treat the patient. One can argue that it is much more complicated than just “treating patients” – it is about many complex factors including illness care, wellness strategies, population and public health initiatives, and varying degrees of trauma management. While this detail is accurate, from a very broad perspective, health system operations are “all about the patient” – if there were no illness or trauma, there would be no need for a healthcare system. Yet, even though the patient group represents the fundamental foundation of the healthcare system, patients have seldom been viewed as more than a “by-product” or “side-effect”. To illustrate, patients are not typically involved in (i) setting healthcare policy; (ii) conducting and disseminating research; (iii) coordinating patient networks; (iv) providing or managing individual care; and (v) evaluating the performance and outcomes of varied healthcare delivery plans. Adding the patient voice to these activities would bring the healthcare system in line with many other industries that have achieved successful adoption of information technology by incorporating consumer inputs. We need to allow patients the freedom and time alone with their healthcare information BUT not alone with their problems! This is where the healthcare delivery system needs to step in. Research to date has identified a very specific patient group that is eager to challenge the status quo. We refer to these patients as Consumers with Chronic Conditions (or the 3C’s). This group is very knowledgeable about their condition(s) and extremely motivated to become fully empowered – both individually and collectively! Symposium Methodology: We anticipate an attendance of 100 people (excluding speakers and support personnel). The symposium will be set up with 10 tables with each table comprising five healthcare personnel and five patients. At different points during the day (see the Agenda in table below for more detail), we will have discussion on five previously-prepared questions. After each question has been discussed, each participant will be asked to confidentially vote. Votes will be tabulated and reported back at the end of the day. The five questions will cover the areas of access, content, use, privacy and outcome measurement. The answers will yield a framework for an action plan on how to move forward in the development of one electronic health record accessible to both patients and healthcare providers. Symposium Agenda: Time Agenda 7:30-8:30 am Coffee and light breakfast - Registration 8:30-8:45 am Kevin J. Leonard: “Welcome and Introduction” Department of Health Policy, Management and Evaluation (HPME), Faculty of Medicine, University of Toronto, and Founder, Patient Destiny 8:45-9:30 am Keynote – Dr. Daniel Z. Sands: “The Patient and the Physician Face Illness in the e-World” Cisco Internet Business Solutions Group, Beth Israel Deaconess Medical Center, and Harvard Medical School, Harvard University 10:30 am Break and discussion of first two questions 10:30-11:00 am Vaughan Glover: “The Leadership Challenges of Evolving to a People-Centred Health System” Canadian Association for People-Centred Health 11:00-11:30 am Khaled El Emam: “What Does the Canadian Public Think About the Privacy of Their Health Information?” Faculty of Medicine and School of Information Technology and Engineering, University of Ottawa, and Canada Research Chair in Electronic Health Information 11:30 am-1:00 pm Lunch break and discussion of next two questions 1:00-1:30 pm Dr. Jay G. Mercer: “Meeting Patients On-line to Actively Manage Chronic Illness” Central Ottawa Family Health Organization, Department of Family Medicine, University of Ottawa, Canadian Medical Association, and MD Physician Services Inc. 1:30-2:00 pm Kevin J. Leonard: “What is the True Value of One Record?” Founder, Patient Destiny 2:00-2:30 pm Discussion of last question 2:30-2:45 pm Break and tabulation of votes 2:45-3:15 pm Dianne W. Carmichael: “Achieving Optimal Patient Outcomes through Better Information and Access to Expertise – Is there a Silver Bullet?” Best Doctors Canada 3:15-4:00 pm Final discussion – reporting on votes and action plan Registration & Fee Structure: Each attendee will be provided a light breakfast and full lunch - Please click here to register. If paying by cheque please complete the online registration and indicate your desire to pay by cheque. Then please print & send your completed registration with your cheque. Patients - No fee Healthcare Personnel - $300 Healthcare Personnel (via cheque) - $300 - Print & send your completed registration with your cheque payment. *Payments may be made using all major credit cards and will appear on your credit card statement as "CAPCH".* Should you wish to pay by cheque kindly download the registration form, and return it with your cheque. Please make your cheque payable to Canadian Association for People-Centred Health and send your payment to: CAPCH - One Patient, One Record P.O. Box 309 Arnprior, ON K7S 3H6 Location: Crowne Plaza Hotel - 101 rue Lyon Street Ottawa ON, K1R 5T9 - Map Help: Should you require assistance please contact Sandra Dalziel (sdalziel@sympatico.ca) 416.464.6242 Please note the registration deadline date of March 26, 2010 Sponsors: Patient Destiny would like to acknowledge the following supporters of this initiative:
Introduction:
In partnership with the Canadian Association for People-Centred Health (CAPCH), Patient Destiny is hosting a second “One Patient, One Record” one-day symposium to promote patient eHealth on Tuesday, April 6, 2010. Building on the success of the inaugural symposium in Toronto in 2009, we seek to create further awareness of the vital importance of patients being able to access their own health information which we believe will improve their health outcomes.
Symposium Objective:
To create the dialogue between patients and representatives of the healthcare system in order to arrive at One Patient, One Record. Ultimately, we believe in developing an electronic health record for all Ontarians that can be accessed by the continuum of healthcare providers as well as the patients themselves which will then lead to improved health outcomes.
Please click here to download the agenda for the upcoming symposium.
Attendees:
“One Patient, One Record” symposia are unique as they offer a dialogue opportunity between two distinct stakeholders – healthcare personnel and patients. The event on April 6th will, once again, bring together key healthcare decision makers and service delivery personnel in direct communication with highly motivated and informed patients.
Patients:
Patients are recruited in several ways: contacted through disease associations and foundations, cross-patient representatives and communications to the public at large through health providers and the media. We are seeking 50 patient representatives.
Healthcare Personnel:
Healthcare personnel are comprised of providers, administrators, researchers, academics, vendors and funding organizations. It is our intention to bring together as representative a group as possible in terms of perspectives, organizational relationships and geography. We are also targeting 50 attendees from this group.
Symposium Background:
In today’s healthcare system, the objective, put quite simply, is to treat the patient. One can argue that it is much more complicated than just “treating patients” – it is about many complex factors including illness care, wellness strategies, population and public health initiatives, and varying degrees of trauma management. While this detail is accurate, from a very broad perspective, health system operations are “all about the patient” – if there were no illness or trauma, there would be no need for a healthcare system.
Yet, even though the patient group represents the fundamental foundation of the healthcare system, patients have seldom been viewed as more than a “by-product” or “side-effect”. To illustrate, patients are not typically involved in (i) setting healthcare policy; (ii) conducting and disseminating research; (iii) coordinating patient networks; (iv) providing or managing individual care; and (v) evaluating the performance and outcomes of varied healthcare delivery plans. Adding the patient voice to these activities would bring the healthcare system in line with many other industries that have achieved successful adoption of information technology by incorporating consumer inputs.
We need to allow patients the freedom and time alone with their healthcare information BUT not alone with their problems! This is where the healthcare delivery system needs to step in. Research to date has identified a very specific patient group that is eager to challenge the status quo. We refer to these patients as Consumers with Chronic Conditions (or the 3C’s). This group is very knowledgeable about their condition(s) and extremely motivated to become fully empowered – both individually and collectively!
Symposium Methodology:
We anticipate an attendance of 100 people (excluding speakers and support personnel). The symposium will be set up with 10 tables with each table comprising five healthcare personnel and five patients. At different points during the day (see the Agenda in table below for more detail), we will have discussion on five previously-prepared questions. After each question has been discussed, each participant will be asked to confidentially vote. Votes will be tabulated and reported back at the end of the day.
The five questions will cover the areas of access, content, use, privacy and outcome measurement. The answers will yield a framework for an action plan on how to move forward in the development of one electronic health record accessible to both patients and healthcare providers.
Symposium Agenda:
Time
Agenda
Registration & Fee Structure:
Each attendee will be provided a light breakfast and full lunch - Please click here to register. If paying by cheque please complete the online registration and indicate your desire to pay by cheque. Then please print & send your completed registration with your cheque.
*Payments may be made using all major credit cards and will appear on your credit card statement as "CAPCH".*
Should you wish to pay by cheque kindly download the registration form, and return it with your cheque.
Please make your cheque payable to Canadian Association for People-Centred Health and send your payment to:
CAPCH - One Patient, One Record P.O. Box 309 Arnprior, ON K7S 3H6
Location:
Crowne Plaza Hotel - 101 rue Lyon Street Ottawa ON, K1R 5T9 - Map
Help:
Should you require assistance please contact Sandra Dalziel (sdalziel@sympatico.ca) 416.464.6242
Please note the registration deadline date of March 26, 2010
Sponsors:
Patient Destiny would like to acknowledge the following supporters of this initiative: